Campbell Robert John Burns was born on 24th January 2012. He is absolutely gorgeous and loved so much by his Mum, Dad, big brother Daniel and big sister Holly.

When Campbell was nine weeks, he was diagnosed with Leigh’s Disease. The diagnosis came out of the blue – although little, he’d been putting weight on steadily and seemed fairly well up to that point.

The diagnosis was devastating. Leigh’s Disease is a rare metabolic disorder which affects the mitochondria in every cell in his body. It means Campbell cannot produce energy properly.

Ultimately, Leigh’s is untreatable and terminal. It means that Campbell’s life expectancy is extremely short. We don’t know how long he’ll be with us, but most children with Leigh’s do not live more than a couple of years.

Campbell is a treasured little boy and we are so grateful to have him in our lives, regardless of how brief a time that will be. We will pour a lifetime’s worth of love into the time we have him and, when he isn’t here, we’ll love him some more.