Our son Michael William Hume was born on at 1:09pm on the 6/1/2011 weighing 3.83Kg temp 36.1 by elective c-section. Throughout my pregnancy i was not very well, constant flu, fever, antibiotics for infections..and when Michael was born he did not come into the world as easy as i had hoped, i ended up going under a general and put to sleep for my sons birth so my husband was not aloud in the room either because of this procedure. When he was born he had to be resuscitated and i did not know fo this as i was in recovery, When i came round i was blurry and confused and was told my son had been sent to the Special babies unit as he had troubles at birth with breathing difficulties. I was sent onto a ward where all the mothers had there babies but i still had not seen my son and it had been by this time 24hrs, it became very upsetting not knowing anything or being able to move from surgery without assistance. A lovely Nurse from the Tiny Lives special babies unit came to the ward to see me and told me that Michael was on a feeding tube to help him feed and was in his own little incubator open bed and was getting lots of attention, i told that nurse how upsetting it was being in a room full of proud mams and dads with there babys, and that nurse managed to get me my own private room where i could be alone. From then on that nurse became my friend and my helper, she helped me get into a wheelchair and she take me to get showered and help me and took me to see my son for the first time, i was nervous and did not know what to expect. When i saw him i burst into tears as he was beautiful and he looked just like his daddy.
A few days came and gone and i spent my birthday in the RVI still in my private room where friends and family came to see me, on that day i remember exactly how i felt all alone and even though all my family and friends were in the room with me and my husband i felt so empty.....BUT then the nurse that had been looking after me came to the room and with her came my son, he was allowed out the Special Baby care after the tube was removed and was holding his food on his own, i even had the opportunity to try breast feeding which that nurse taught me aswell but unfortunatly with Michael being so unwell at the time it just was not possible. I was overjoyed and my husband and me and family were so happy to see him with us and getting to hold and cuddle him.
On the 10th of january me and michael were finally allowed to go home and be a family with my husband and his older brother.
We shared many memories and took over 147 pictures and i even captured his first smile.
Sadly on the 6/3/2011 my husband and myself woke up and heard little michael crying for his feed, so i got half way down the stairs to then hear my husband shout to call an ambulance, in that short space of 5minuits out son sadly went from crying for a feed to passing away into gods hands, i rang the ambulance and they showed up, my husband travelled int the ambulance and my neighbour watched my eldest and my other neighbour took me in my car to the hospital to catch up with the rapid responce unit and ambulance. After 30minuits of trying in the hospital unfortunatly our son did not make it. We got to hold him once last time with entire family showing up to hold him too and to say there goodbyes, the hospital did a print of his foot and hand and gave me a lock of his hair and his blanket back.
All they could say at the time was COT death, 1yr later genetics teams and peads teams contacted me asking to meet me to finally find out my son suffered from Hyperinsulinemic Hypoglycemia where his body formed low blood glucose caused by excessive insulin and unfortunatly caused our son to have a stroke.
We had the best 2months of our lives with michael and will never forget him, but thanks to the peads doctor at tiny lives i would never of been able to greive for my son and if it want for the lovely staff such as that one nurse i wouldnt of got my privacy and to see him on my birthday.
Reason to Raise £6111.....It is our sons D.O.B (6/1/11)
thankyou for taking the time to read our story
xxxxx