Melanie Barron

Mel's Rare Disease Day

Fundraising for Pseudomyxoma Survivor
£1,107
raised of £500 target
Donations cannot currently be made to this page
Rare Disease Day, 28 February 2014
Pseudomyxoma Survivor

Verified by JustGiving

RCN 1143642
We raise awareness/ offer support to improve the lives of PMP patients

Story

On 07/12/12 my life changed forever. I sat in front of my doctor and she uttered the words " we think its a tumour" My reaction was one of denial and I had convinced myself that further tests would prove her wrong. after another 8 weeks of "normal" blood tests and "inconclusive" biopsies I was told I had Pseudomyxoma Peritonei (PMP) I had never heard of it!! My local hospital in Ipswich then referred me to a specialist in Basingstoke, 150 miles away!! I was soon to find out the reason for this is because PMP is very rare form of cancer and effects 1-2 people in every million and that Basingstoke is 1 of only 2 hospitals in the UK that specialise in treatment for the disease. On my first visit to Basingstoke my specialist enlightened me more on PMP and said I would be monitered by blood tests and CT scans which he called "watch and wait" and that I should see him again in 6 months time. I read and re-read the info he gave me on this and realised if I was going to defeat this it would involve MAJOR surgery. I joined a PMP facebook page and saw that people reffered to the surgery as MOAS, which I thought was a medical term but apparently it means " mother of all surgeries!!" I face losing my spleen, gallbladder, ovaries, womb, uterus, part of my bowel, colon and having my liver scraped. I will then have my abdominal area flushed with hot chemo whilst still in theatre!! The operation can last about 10 hours and involves a hospital stay of 3 weeks (and all of this 150 miles away from home!!) So fast forward to now and I now face this surgery on April 1st this year!! My aim is to have raised £500 by the time I go into hospital so PLEASE PLEASE help me do this. The Pseudomyoxma Survivor charity is run by 2 wonderful ladies from their own homes whilst facing their own battles. If it wasnt for finding out about this charity I would have felt incredibly alone and isolated.This group has helped me to deal with my rare condition and has made me realise I am not alone xx Just £5 can enable them to print and send out 5 posters so that this rare disease can get a higher profile so that people can be diagnosed quicker. £1000 would pay for a small research grant! I really want to help them boost their funds and I hope you want to join me in my quest xx

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About the charity

Pseudomyxoma Survivor

Verified by JustGiving

RCN 1143642
Pseudomyxoma Survivor aims to raise awareness of PMP and appendix cancers, to provide emotional and practical support and information to survivors and their families on our website and online community. We are also dedicated to raising funds for research into this extremely rare disease.

Donation summary

Total raised
£1,107.00
+ £257.75 Gift Aid
Online donations
£1,107.00
Offline donations
£0.00

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