Behcets Syndrome Society

Emily McGovern is raising money for Behcet's UK
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Mario Siblings: Behcets Syndrome Society · 30 November 2018

Behçet's (pronounced Bet-jets) is a rare, complex and life-long condition caused by disturbances in the body's immune system. Behçet's can affect people of any age, but it most common in those aged 20-40. The society runs a helpline, funds research, and offers financial support for patients in need.

Story

Behcets syndrome/disease is a rare autoimmune disorder that Lee (one of the team members) was diagnosed with a number of years ago. 


Behcets is a complex inflammatory disease and sufferers have multiple symptoms including both internal and external ulcers, eye involvement (with a risk of going blind), joint pain (rheumatoid arthritis), chronic fatigue, gastrointestinal issues, chronic headaches... and that's just a few. Unfortunately, due to the lack of funding and rarity of this disease, there are no cures or even medication; since being diagnosed Lee has been on a cocktail of different drugs that are primarily for other diseases to try and manage her symptoms. Some work, some don't... it can be a bit of a rollercoaster for someone with Bechets. 

More funding would enable more research into the disease and provide better medical care for sufferers. Therefore we're asking for you to part with your hard earned cash to help us.

Donation summary

Total
£532.00
+ £90.00 Gift Aid
Online
£432.00
Offline
£100.00

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