Many thanks for visiting this page.

Our daughter, Rose, has a growth condition called Silver-Russell syndrome.

It is a rare condition: worldwide estimates range from 1 in 30,000 to 1 in 100,000 people. She was born at 33 weeks, weighing 1kg (2lbs) only and was diagnosed shortly after her birth while staying 9 weeks at the NICU (Queen Alexandra hospital, Portsmouth).

The condition is characterised by a very slow body growth - she just turned 3 yo and is 66 cm (26 in) high and weighs a bit more than 6 kg (13 lbs) only..the average toddler at this age is 96 cm (38 in) and about 14 kg (31 lbs). She is surely one of the smallest 3 yo girl in Portsmouth, Hampshire and even the UK...

Feeding problems are very common in Silver-Russell syndrome. A lack of appetite and low blood sugar level make monitoring calorie intake a daily battle. We have to constantly feed her to make sure she has enough energy. As she was 1 yo, we had to prepare up to 14 bottles a day

Her small size impacts her motor and speech development. At 3 yo she is not able to walk or properly talk yet..she is a clever and very happy little girl though and we constantly need to keep her stimulated!

The condition is very complex and challenging and each case is unique...

That is why I have decided to run 10 miles to raise awareness and support the Child Growth Foundation https://childgrowthfoundation.org/ which helps the research to better understand the conditions, but most importantly helps the children and their families to receive a clinical diagnosis and a corresponding care plan so that no-one faces this alone.

Many thanks in advance for your support :)