On Sunday, 23rd May 2010 I, Ann Johnson, Helen my daughter and her partner Dave are taking part in the Walk for Skin 2010 and supporting the British Skin Foundation.  The British Skin Foundation is the only registered charity dedicated to raising funds for skin disease research. 

Following the death of my youngest daughter Anna in 1981 at the age of 6 months from a rare genetic medical condition called Gorlin Syndrome other family members were tested and it was confirmed that my husband Jim and two of our three surviving children were also affected.  

Gorlin Syndrome (also known as Nevoid Basal Cell Carcinoma Syndrome) is characterised by the development of multiple jaw cysts (keratocysts) and basal cell carcinomas (skin cancers).  Other features occur in the syndrome, although most are rare but these can include ophthamic problems, cleft lip and palate, ovarian and cardiac fibromas (fibromas are benign tumours) and medulloblastoma (a type of brain tumour). 

Unfortunately Jim lost his battle against the condition in December 2002 but for many years before he rose above adversity and strove the set up and run a patient support group.  The work of the group is on-going and we are now in contact with 350 - 400 patients and their families in the UK, offering information, guidance and support about the condition.  75% of the sponsorship we raise via this page will come to the Gorlin Syndrome Group and thus ensure our continuing work.   As a small registered charity we rely on voluntary donations and fundraising of this nature.

We welcome, value and thank everyone for their support.

Margaret, Ann, Helen and Dave.

 

Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.