Story
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MSA is a rare neurological disorder that affects around 5 in every 100, 000 people. People with MSA may never meet another person with the condition and sadly most healthcare and social care professionals will not have treated or supported someone with MSA. Most people won't know about MSA unless they themselves have met someone affected by it.
MSA causes severe problems to mobility, speech and autonomic body functions e.g. blood pressure control. This disease is progressive and there is currently no cure. Treatment is focused on palliative care which means assisting or alleviating the symptoms with lifestyle adaptations and medication.
The MSA Trust is a charity that strives to do all they can to support people with MSA and their families. They receive no Government support and rely solely on donations to give families like ours the physical and emotional support they need when a devastating diagnosis of MSA is made. They are also the principal funder of innovative research in the UK. These clinical studies are helping us to learn more about this disease and we hope one day will help find a cure so that their vision of a world without MSA may be realised.
Last summer we raised even more on our second climb up Scafell Pike and we plan to continue this effort by climbing Ben Nevis to complete the last of the peaks. It has been a difficult few years for our family, and even though we feel so helpless, we want to do what we can to help other families struggling with MSA.
We thank you for reading our page and hope that you can help us by starting a conversation about MSA. Speak to your families and friends and especially any health or social care professionals you know. Any donations for this cause are appreciated and we hope that these donations will help us to get a step closer to a world without MSA.