In January 2012 I went into premature labour. Due to acomplication called twin-2-twin transfusion at 27 weeks and 5 days I suddenly gave birth to our girls, Neve and Imogen. Unfortunately we lost our first twin Imogen and I had to be rushed into to theatre for an emergency caesarean to save Neve.

Born weighing just 723 grams, Neve had to be resuscitated. She was so tiny, so weak, unwell and was rushed into to Milton Keynes neonatal intensive care unit to fight for her life.

Neve spent a total of 5 months between Milton Keynes and John Radcliffe neonatal intensive care units, heavily ventilated for 2 and a half months fighting infections and general keeping the doctors and nurses constantly on there toes! Some days were just ok and some days were so bleak we had to live minute by minute, hour by hour, wondering whether we would ever walk out the hospital with her in her car seat.

We aged a year every time her buzzers went off and another 5 very time she decided to have her blue moments as we called them – when she stopped breathing. Just when you thought you were out of the woods there was something else lurking round the corner to knock you back again!

5 long months later Neve finally came home to complete our family. Due to her rough start in life we found out that she is profoundly deaf and has cerebral palsy. In 2013 she underwent an operation for bilateral cochlea implant which was a great success. She enjoys everyone waffling on all day to her but I think most of all she just enjoys the sound of her own voice.

Neve's type of cerebral palsy affects all four of her limbs. She has what is called low tone in her trunk with poor head control which means she is unable to sit unaided. We are unsure of her future in as far as whether she will be able to walk and talk but you can see the want and determination to do things in her eyes. It's just a fight against her body!

So here we are 12 years on!!!You can imagine how hard it can be for us as parents to not see our gorgeous girl thrive in the ways we had planned in our minds, whilst those hopes and dreams we had for them before they were even born seem unreachable and we had to make new hopes and dreams for simple tasks like being able to sit or feed herself! But everyday Neve does something new and although small and insignificant to most parents, to us it's so huge, since we started fundraising for Neve we have been able to adapt our home garden for her, buy her amazing pieces of equipment that wouldn't be readily available through the NHS and pay for extra on going therapies.

We would love to carry on fundraising for Nevebug, she can brighten up any bodies day with her gorgeous smile, her happy spirit and her joyful giggles. We are fund raising for Tree of Hope where all you donations will go in to an account for Neve to purchase, anything she may need in her future, therapies, equipment, home adaptions and anything that is purchased that she grows out of will be donated to another child who can benefit.

Thank you so much.