Story
Thanks for taking the time to visit my JustGiving page.
I'm fundraising for Motor Neurone Disease Association because it's a cause very close to my own heart. I'm confident it's not incurable, it's just hugely underfunded. Even though it's unlikely any break through will directly impact my dad, I seek comfort in knowing that it won't destroy the outlook for families living with MND forever.
This year I have set myself the challenge of three marathons, just weeks apart - Brighton, London and finishing poignantly at the Rob Burrows Leeds Marathon.
This is (will be) the biggest sporting accomplishment of my life and I'm doing this to mark ten years of my dad living with this cruel, deliberating disease that changed the landscape for my dad and my family, back in January 2013...
I remember quite vividly that cold, but bright day - sat around a table at The Dog and Gun, where he first broke the news of his official diagnosis. My heart felt like it had shattered into a zillion pieces, even though we were anticipating the news. Tiptoeing around the subject, and navigating around discussing the horrible parts of the disease, we proceeded to order food.
I remember feeling physically sick, unable to eat what was on order and afraid to ask questions, when I wasn't ready for the answers (from my poor dad at least). I spent most the days that followed "googling" and I still find myself on Google a lot. I wish I felt more able to chat it through with him, and of course a lot has changed in the last decade, but I still find it emotionally overwhelming, ten years on to chat one to one. Dad if you read this, it's just too hard for me to talk about something that will ultimately take your life. I'm sorry I'm rubbish at the hard stuff.
However, here we are in 2023 - my dad, the MND warrior that he is, has surpassed his two year life expectancy and I'm doing this challenge to "celebrate" this, and hopefully raise a tidy some of money for the charity along the way. If you're able to donate any amount, I will be forever grateful 🧡💙🧡💙