Living with a rare chronic condition, Complex Regional Pain Syndrome (CRPS) or Algoneurodystrophy in French, can turn your world upside down. Burning Nights CRPS Support is an independent UK charity dedicated to not only raising awareness for this debilitating & life-changing condition but to also support anyone who’s lives have been affected by it.They support patients & their families, friends & carers with frontline services. 

I want to raise awareness of this condition and this charity That’s why I’ve spent the summer learning how to swim with my knee injury, I’m tackling my PTSD to get back on a bike and I’m learning that you DO walk faster if you develop that little Nordic wiggle (it’s going to be a while before I can (!) run again). My aim is to finish my 250m open water swim; 10km cycle & 2.5km walk within the 1hr30 mins deadline. Your support for me and this charity will help motivate me to make it across the finish line. Thank you x