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Last year we completed the challenge of completing 4 rounds of golf that included walking just over 27 miles whilst carrying our clubs and we plan to repeat the challenge in order to raise some money for this fantastic charity that relies totally on donations and is entirely run by volunteers.
Angelman syndrome (AS) is a rare genetic condition that affects one in 20,000 people or 500,000 people worldwide. The condition effects the nervous system and causes severe physical and learning disabilities resulting in: lack of speech; movement and balance challenges affecting the ability to walk; epileptic seizures; sleep disturbance and many more - all resulting in the need for lifelong 24/7 care.
All proceeds raised will be going towards Angelman UK.