Story
Thanks for taking the time to visit my JustGiving page set up to raise funds for Histiocytosis UK.
Last summer my four-year-old son Sam was diagnosed with a rare cancer-like disease called Langerhans cell Histiocytosis (LCH) which causes immature white blood cells to mutate and attack skin, bones and major organs.
It can affect bones, causing them to fracture and disintegrate, eat away at the liver, spleen and lungs, cause deafness or attack the pituitary gland causing neurological damage. Sadly, in some cases, it is fatal.
Although it can affect adults, LCH is predominantly found in children and tends to be more common in boys than girls. No one knows what causes it.
After undergoing surgery and six months of chemotherapy, Sam is due to finish his treatment this summer and fingers crossed, he will fully recover.
LCH is incredibly rare, affecting just 50 kids in the UK each year. Because of this, it doesn’t get the funding needed to develop new drugs to treat this horrible condition.
To repay some of the kindness and support we have received over the last year and raise much-needed funds for research into LCH to help beat this terrible disease.
For more information on Langheran’s Cell Histiocytosis visit www.histiouk.org
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