Thanks for taking the time to visit my JustGiving page.

I am doing this because our beautiful boy has recently been diagnosed with Smith-magenis syndrome and sadly the way we was told was very poor because there just isn’t enough knowledge about SMS because it is so rare, the foundation have helped us feel calm and not alone. The way we have felt as a family since Ronnie’s diagnosis has been so so scary and the foundation has really helped us to not be scared. 

I want to do this so that this charity can always be there for parents because they have helped us so so much and I’ll be forever grateful. 🤍