As you may know our daughter Kaidey was born 1/12/2012 with a rare genetic disorder, so rare that no one else is known to have the same condition.  She is currently being fed by tube into the stomach and is unable to take anything orally.  She is partially deaf and is unable to hold her head up or sit up as has no central muscle. She currently attends a sense group in kingswood where she has music therapy and sensory play. I am looking to raise money for the charity to help them continue in the great work that they do.

Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.