Story
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Myself and some wonderful bunch of ladies are walking the Shine Walk half marathon on the 26th September 2015 for Cancer Research and MPD Voice. I have a myeloproliferative neoplasm. The only cure for me is to have a stem cell transplant, but at the time of diagnosis (18 months ago) my quality of life did not warrant the risk. I am on a ‘watch and wait’ system with regular visits to Guys Hospital to be monitored. I take daily chemotherapy drugs that currently manage my condition.
More than 5,300 people are diagnosed with rare forms of blood cancers and related conditions in the UK every year. These conditions cause normal blood cell production to breakdown and generally patients are left with insufficient healthy, functioning blood cells in their system.
The most common of these conditions are the myeloproliferative neoplasms (MPN), a group of blood cancers, related to leukaemia, that affect around 3,300 people in the UK every year.
When people have MPN, blood cell production becomes over-active causing the blood to become thick.
The myelodysplastic syndromes (MDS) are another group of blood disorders that affect around 2,000 people in the UK. Usually people with MDS make far too many blood cells, but these are mostly defective and not able to do their jobs properly. In fact most of these cells are destroyed before even entering the blood stream meaning that people with MDS have far too few cells in their blood.
Aplastic anaemia is another rare blood disorder that results in not enough blood cells being produced. However, unlike MDS and MPN, this disorder does not result in the production of cancerous or abnormal blood cells, rather a lack of healthy blood cells.
https://leukaemialymphomaresearch.org.uk/
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