Thanks for taking the time to visit my JustGiving page.

Our daughter Beatrix was diagnosed with the rare genetic condition of Kabuki in 2015. Ever since she was diagnosed we have found comfort, strength and hope in the time and kindness of other Kabuki families.

This just giving fundraising is a way for me to say thank you to Kabuki UK for the support now and in the future.

Please do give kindly to this charity as they are small and every £ counts.

Money will go on specialist equipment to help children with Kabuki, annual Kabuki family day and travel for those families that would otherwise struggle to join us for the family day.