DEBRA Surrey Cycle
Fundraising for DEBRA
Fundraising for DEBRA
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On the 12th May 2013 I'm going to cycle 100 kilometres around Surrey taking in the iconic Box Hill (Part of the 2012 London Olympic Road Race course).
Our close friends youngest daughter was born this year with EB. Epidermolysis Bullosa (EB) is a very rare genetic condition in which the skin and internal body linings blister at the slightest knock or rub, causing painful, open wounds.
EB is likely to affect 1 in 17,000 live births and it is estimated that there are currently 5,000 people with the condition in the UK. Because EB is an inherited condition (it cannot be caught), which is passed on genetically from parents to children, first time parents often do not know that they are carriers and will have no prior warning that the child will be affected, until birth.
When our freinds they told me what great support DEBRA has given them I wanted to do something to help.
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