This years chosen charity is for the Smith-Magenis syndrome. This charity has a special place in our hearts. Our newest staff member Cheryl has a beautiful son who has the syndrome.

Harlen was diagnosed at 6 months old with Smith-Magenis Syndrome.
Smith-Magenis Syndrome is a rare genetic disability due to microdeletion or mutation on Chromosome 17.
The main factors are:
*sleep disturbance
*behaviour problems
*delayed speech and language
*health problems: heart, respiratory and kidneys
*Epilepsy
Harlen also has a diagnosis of Autism and ADHD.

Life can be extremely difficult but Harlen is a very cheeky little boy with the best smile and once he gives you that smile all is forgotten 💙

💙 💙 We are planning lots of different fund raising days, including a raffle for our Christmas party and a photo shoot. 💙💙

Help us to ensure every person with Smith-Magenis Syndrome shall have a fulfilling life within a supportive and understanding community.The Smith-Magenis Syndrome (SMS) Foundation UK is at the heart of our community. We will be the first point of contact for those seeking information and support. Nobody should ever feel isolated or alone. We value every person affected by this genetic disorder and shall empower them to reach their full potential as respected members of society.Connecting Families – Raising Awareness – Building