Katharine Thornton-Jones

Jasper's Journey

Fundraising for Tree of Hope
£35,756
raised of £100,000 target
by 75 supporters
Event: Jasper Thornton Jones, on 31 December 2018
Jasper Thornton Jones, 31 December 2018
Tree of Hope

Verified by JustGiving

RCN 1149254 In Scotland SC042611
We offer hope to families to transform the lives of sick children

Story

Five years ago our son, Jasper, suffered the life-changing setback of paraplegia.   We need your help to keep up his long-term specialist physical therapy in order to ensure that he develops to the best of his potential despite his injury.  We face a significant physiotherapy bill every week for many years to come and are looking to you the community that cares for Jasper to help us carry him forward.  (Moral support is always welcome…but cash is the real tonic!)

You can help us immensely by a one-off donation in any amount, a recurring donation (standing order), or by organising a fundraiser of any type for Jasper yourself -- running a marathon in his name, a cycle ride, a bake sale -- please contact Kate for help and ideas!  The funds go to Jasper's designated Tree of Hope account, a registered charity, and they pay Jasper's medical bills directly.

What Happened?

Jasper, now aged five, charged through his first eighteen months with barely a cough. He then contracted ‘hand, foot & mouth’ virus at a Halloween party.  No big deal, every kids gets it, right?  He was poorly for a week and that was that.  But… no, in very rare cases (lightening strike odds) the virus incubates and later attacks vital organs.  In Jasper's case it was his heart.  Just after Christmas 2014 his heart stopped and he was put on full life support (ECMO) for two weeks.  During this precarious time he suffered a spinal stroke which left him with paralysis in his legs, and rendered him unable to stand or walk.  

What Now?

This life-changing diagnosis, after exploring what the NHS could offer Jasper in the UK (or lack thereof), led us swiftly to look at groundbreaking spinal rehabilitation being carried out in at a hospital in Louisville, Kentucky in the US (hometown of Muhamed Ali and KFC).  Kate, Jasper and baby Elliot spent 14 months there with Jasper receiving therapy twice a day.  There he received a cutting-edge type of physical therapy which is proven to promote permanent recovery of muscle function in people with spinal cord injuries. Not only does it help him to regain use of his muscles, it helps his bones to grow properly, which is a major concern for small children who cannot walk.  Since starting the therapy he has regained significant, measurable function in his lower back, abdomen and upper legs, and can even peddle a modified tricycle uphill!

Jasper is now back in the UK and attending, five times a week, the recently opened Neurokinex therapy centre near our home in Reigate.  The centre is part of the world-renown Christopher (aka Superman) and Dana Reeve Foundation's Neurorecovery Network, the first of its kind outside of the US.  The centre follows the pioneering rehab methodology of the hospital Jasper was at in Kentucky and through an amazing
bit of serendipidous good fortune he is paediatric patient number one.

The real kicker is a financial one - the centre is private. Yes, we have to pay out of pocket, and no, regrettably nothing remotely similar is provided by the NHS, nor will this be something that is likely to change soon.  We have to act on Jasper’s behalf now and continue his rehabilitation therapy in order to maintain any hope for further improvement and the possibility of life without a wheelchair.

Our Plea

Please help us to raise the money to continue with this therapy in the UK and the US.  Our current target is to raise the funds to cover his therapy for the next five years, as well as for therapeutic equipment also not provided by the NHS, such as custom, light-weight leg braces which will get him upright.

You can help us immensely by a one-off donation in any amount, a recurring donation (standing order), or by organising a fundraiser of any type for Jasper yourself -- running a marathon in his name, a cycle ride, a bake sale -- please contact Kate for help and ideas!  The funds go to Jasper's designated Tree of Hope account, a registered charity, and they pay Jasper's medical bills directly.

Your donation will also help other children with spinal cord injuries.  The data related to Jasper's gains is being recorded and complied by the Reeve Foundation in order to demonstrate to the medical community and health insurers that this therapy is a necessity for recovery, growth and a vastly improved quality of life of young SCI sufferers.

You can follow Jasper's Journey on Facebook by searching @jaspersjourneyuk !

7.5% of all donations to Tree of Hope in relation to this appeal will be allocated to the general charitable purposes of Tree of Hope to cover our core operating costs.

If we raise insufficient funds, or surplus funds, then the funds will be used, if appropriate, to fund support for our child’s needs in accordance with Tree of Hope’s charitable objects. If in those circumstances we are unable to use all or part of the funds for the benefit of our child in accordance with Tree of Hope’s charitable objects, then any funds that cannot be used will be transferred to be used for the general charitable purposes of Tree of Hope.


About the charity

Tree of Hope

Verified by JustGiving

RCN 1149254 In Scotland SC042611
All donations are paid into Tree of Hope's general funds which fund our charitable activities. Our charitable activities are focused on raising & managing funds for medical treatment, therapy & equipment for sick & disabled children. England & Wales 1149254 Scotland SCO4261 www.treeofhope.org.uk

Donation summary

Total raised
£35,755.86
+ £397.75 Gift Aid
Online donations
£9,755.86
Offline donations
£26,000.00

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