Thanks for taking the time to visit my JustGiving page.

As some of you know, my kind, caring and beautiful mother Myra Morris was diagnosed with Multiple System Atrophy in 2021. This was not a condition that I (or any of my family) had heard of. It is a rare, debilitating and terminal disease which combines the worst elements of Parkinson's, Ataxia (another rarity) and ALS / Motor Neurone Disease. 

MSA moves quickly and within months patients lose fundamental things that we all take for granted: the ability to walk, to dress themselves, to speak, and so, so much more. MSA will typically lead to death within a few years of first symptoms, but before that it will leave its victims bedridden and silenced. 

Like most people, I never thought one of these "rare diseases" would appear in our lives, but nonetheless it did. One of the toughest things to accept is that there is currently no cure, nor any treatment which can slow down its relentless progression. But there is hope... 

The MSA Trust supports those who have been affected by MSA and funds research into potential cures. There are 3,500 people in the UK living with this condition, many in desperate need of care which the NHS is not able to provide. There are studies examining the causes of MSA and potential treatments being developed. 

I would be incredibly grateful if you would consider supporting me as I raise funds for the MSA Trust, a small organisation which is entirely dependent on charitable giving. It is the only beacon of hope for those whose life has suddenly become unbearably hard.  

Thank you, 

James