James Lindsay

Jamie's 24 hr 8 Ball Pool Marathon Thursday 21st 12:00,

Fundraising for ROHHAD Association
£1,530
raised of £750 target
24 hr Pool Marathon, 21 May 2020
ROHHAD Association

Verified by JustGiving

RCN SC045645
We fundraise for ROHHAD Research & Support to improve survival rates worldwide

Story

As a friend of Leah's family I'm always happy to support the ROHHAD Association fundraising they tirelessly organise,  buying  raffle tickets & attending events whenever possible but with the free time I now find i have in these very worrying times & conscious that many ROHHAD fundraising events would have had to be cancelled due to the Corona lockdown i would like to do more, i will livestream the 24 hours & apologise in advance as it wont exactly be riveting tv but could be rather entertaining if it rains as my pool table is in the garden, the plan is to take no more than four15 minute refreshment breaks during the 24 hours 

Any & every donation however large or small will be greatfully recieved 

Leah who is 10 years old lives in Sittingbourne and suffers from ROHHAD syndrome. ROHHAD is an acronym for rapid-onset obesity (RO) with hypothalamic dysregulation (H), hypoventilation (H), and autonomic dysregulation (AD). It is a rare, life-threatening syndrome that affects the autonomic nervous system (which controls involuntary actions like breathing and your heartbeat) and the endocrine system. 


There are currently less than 100 children worldwide diagnosed with this condition!

This event will assist in raising the funds that will go towards the research that will help find a cure for Leah and other children. The charity receive no government funding whatsoever.

http://www.rohhadassociation.com

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About the charity

ROHHAD Association

Verified by JustGiving

RCN SC045645
ROHHAD is a rare life threatening and life limiting condition affecting Children worldwide. The Charity mission is to - Fund and promote research leading to a new understanding of and treatments for ROHHAD, one day leading to a cure. We also offer support to those affected and raise vital awareness

Donation summary

Total raised
£1,530.00
Online donations
£1,530.00
Offline donations
£0.00

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