MY STORY

Last year you helped me in raising £6,000 (a large contribution coming from work) for PSC Support research. I now volunteer for PSC Support to help others affected by PSC.

WHAT CAN YOU DO TO HELP?



• Sponsor me through just giving web site or using the text message service



• Think about organ donation and if you do decide to sign the register, discuss with your family so they know your wishes

• If you live in Brighton, come and support me along the way

• If you are on Facebook, cheer me on using the RunMeter app and I will get them direct through my headphones 

WHAT IS PSC (Primary Sclerosing Cholangitis)?


PSC is a rare Liver disease that has no known cause, cure or treatment. It causes the bile ducts both inside and outside the liver to become scarred, narrowed and eventually blocked. As more ducts become blocked, bile becomes trapped and damages the liver, leading to cirrhosis and liver failure.Symptoms along the way can often include:

• Chronic, debilitating fatigue 
• Severe, uncontrollable itching 
• Dangerous infections of the bile ducts 
• Pain in the body’s Upper Right Quadrant 
• Jaundice  



The mechanisms of PSC are not clearly understood but it is definitely not caused by alcohol or other “lifestyle choices”. Current evidence suggests it is a combination of genetics, the immune system and some sort of trigger. PSC sufferers often have associated autoimmune diseases, most commonly inflammatory bowel diseases such as Crohn’s Disease or Ulcerative Colitis. As well as all that they also have a significant increase in the risks of bowel, liver and pancreatic cancers. Basically, you just don’t want to get PSC. 



ABOUT PSC SUPPORT 


There’s so little help for research and PSC sufferers and that’s where PSC Support comes in. PSC Support is a charity, totally run by volunteers, that helps people affected by PSC, including sufferers themselves, and their families. Your donation to PSC Support will make a real difference and will help provide information and support to those affected by PSC, promote PSC and organ donation awareness and develop effective partnerships with those involved with treatment and vitally needed research into PSC. Please look at our web site for more information.

So please dig deep and donate now, any contribution will be gratefully received 

Thanks in advance

James

 

 

 

 

I now volunteer for PSC Support to help others affected by PSC. Please look at our web site for more information.

WHAT IS PSC?
PSC is a rare Liver disease that has no known cause, cure or treatment. It causes the bile ducts both inside and outside the liver to become scarred, narrowed and eventually blocked. As more ducts become blocked, bile becomes trapped and damages the liver, leading to cirrhosis and liver failure. Symptoms along the way can often include:

• Chronic, debilitating fatigue
• Severe, uncontrollable itching
• Dangerous infections of the bile ducts
• Pain in the body’s Upper Right Quadrant
• Jaundice

The mechanisms of PSC are not clearly understood but it is definitely not caused by alcohol or other “lifestyle choices”. Current evidence suggests it is a combination of genetics, the immune system and some sort of trigger. PSC sufferers often have associated autoimmune diseases, most commonly inflammatory bowel diseases such as Crohn’s Disease or Ulcerative Colitis. As well as all that they also have a significant increase in the risks of bowel, liver and pancreatic cancers. Basically, you just don’t want to get PSC.

ABOUT PSC SUPPORT
There’s so little help for research and PSC sufferers and that’s where PSC Support comes in. PSC Support is a charity, totally run by volunteers, that helps people affected by PSC, including sufferers themselves, and their families. Your donation to PSC Support will make a real difference and will help provide information and support to those affected by PSC, promote PSC and organ donation awareness and develop effective partnerships with those involved with treatment and vitally needed research into PSC.