We are putting together a ‘Jacobs Journey Christmas Raffle’ to raise vital funds for Jacobs home adaptations. 

Tickets will be sold as £5 per strip. 

To buy your tickets to win some great prizes all you need to do is donate £5 to this just giving page and screenshot your donation and either send It to Jacobs Mummy Sophie  or contact Rebecca Hayward and we will send you through your raffle tickets with a picture of your numbers. 

Jacob will draw the winning tickets via an online live on the 12th December and we will arrange a socially distanced delivery or collection of the prizes! :) 

This is Jacob and he is 5 years old. Jacob was born with a very rare genetic disorder called NEXMIF/ KIA2022. It's so rare that there are less then 100 cases that we know of worldwide so there is lack of research and information. This condition causes Jacob to have a severe global developmental delay ( his mental age is approximately 12 month old maybe younger) Jacob has learning disabilities and epilepsy as well as being non verbal but is keen to learn some signs to communicate to his family and teachers. Jacob has sensory processing disorder and behavioural issues, he also has other complex health needs with his hormones and pituitary gland and takes regular medication daily. Jacob cannot walk far without support, and he cannot climb up and down stairs.

Jacob lives at home with his Mum Sophie, Dad Iain and little sister Millie. Sophie and Iain carry (almost 3 stone) of Jacob up and down stairs on a daily basis for the bathroom and his bedroom. Jacob has behavioural issues and tends to hit out or kick so it can be very dangerous using stairs.

Jacob needs his home to be adapted to meet his needs, as he gets older and heavier his parents want to continue caring for him but are so worried they will no longer be able to carry him up and down the stairs and they want to be able to care for Jacob at home safely and with the dignity he deserves.

A bedroom and wetroom downstairs would give Jacob the independence he so desperately needs and will change his life for him and his family. Jacobs favourite thing is water, he loves splashing in the bath more then anything! We want to be able to give Jacob the freedom to splash as much as he likes without worrying about the the water leaking into the kitchen!

Jacob is the happiest little boy and his smile shines brighter then the sun. His flappy hands and excited noises makes everyone fall in love with him. He is so cheeky and has such a love for people... and ducks!

We got told not to expect much from Jacobs life, that he wouldn't be able to do much at all... he has proved everyone wrong! We never gave up and after endless therapies, physios, messy play and sensory sessions he amazed us all! He has gone through so much and achieved amazing things in his 5 years of life. He is an absolute hero!!

We want to help Jacob as much as we can on his journey. Please help us help him

Thank you!

Love Team Jacob xxx

Sullivan’s Heroes is a charity offering support and financial assistance for families raising essential funds for vital home adaptations for a disabled child, to continue to care for their child at home, safely and with dignity.