Ethan is one of the many children in the Hunter Region with complex, chronic gastrointestinal and liver conditions. Children with complex gastrointestinal and liver disease need long-term or lifelong treatment, costly equipment, coordinated multidisciplinary support and continued research. Yet the daily challenges these children face are often invisible.

Treatment for children like Ethan takes a village. Coordinated by the JHCH Gastroenterology Team, they also collaborate with Children's Hospital Westmead and genetic researchers at the Royal Prince Alfred Hospital.In addition to medical treatment, the JHCH Gastroenterology Team supports families like ours to navigate this journey smoothly by coordinating his appointments with many other specialties at the John Hunter, such as Hunter Genetics, the paediatric cardiology, immunology and endocrinology teams. Due to frequent internal bleeding, Ethan's treatment also includes going to hospital every two weeks for blood tests, infusions and countless blood transfusions. His condition is also monitored through regular procedures and imaging such as ultrasounds.

We'd like to support them to purchase other equipment and resources they need to continue their excellent work.

Together we can support the JHCH Gastroenterology and Hepatology Team, to provide the best support they can to children like Ethan. Together, let's make these invisible liver and gastroenterological conditions visible.