Jamie Inglis 17.8.05-15.1.13

Brave Jamie Inglis passed away on 15 January 2013 after battling neuroblastoma for half of his life. Jamie inspired thousands of people in his short life, with his beautiful cheeky smile and his unstinting bravery in the face of this brutally aggressive cancer. Jamie’s cheerful, happy spirit and his strong character will never be forgotten by everyone who came into contact with him.

His parents, John and Vicky, ask everyone to continue fundraising in memory of their precious son. They have pledged to continue their fight against neuroblastoma, to help other families affected by the disease and to try and ensure that others do not have to experience what Jamie went through.

John says, "Please don't give up on my son's cause. There are still dozens of little Jamies out there and their families need the same support that we got." 

Vicky added, "Jamie’s legacy is too big and too important for us to say that it’s over. We have lost our son, but it will help us to cope by seeing our terrible loss as the beginning of something new. Neuroblastoma is not a death certificate because some children do get through it. That’s why you, and we, can’t give up on it.”

This fund has been set up by the Neuroblastoma Children's Cancer Alliance UK, the charity that helped Jamie’s family fundraise for his treatment.

Please help us to create a lasting legacy of hope in Jamie's memory. Your donations will be used to help babies and children with neuroblastoma to get help if they can’t join a UK trial, or if they need a clinical treatment that is only available abroad. With your help, we can fund children’s treatment costs, support families and pay for research into the disease.

We would love to help you if you would like to organise a fundraising event or activity in Jamie’s memory—please contact us on 020 7284 0800 or email us on info@ncca-uk.org You can also contact us through our website: www.ncca-uk.org

 

 

 

Treatments

Children with high risk neuroblastoma can receive chemotherapy, surgery, radiation therapy, stem cell transplant and immunotherapy. Different clinical treatments are being trialled in Europe—including the UK—and the United States.

Not all children can join UK trials to get the potentially life-saving treatment they need. Some of the trials, especially for relapsed neuroblastoma, are only available abroad.

 What is neuroblastoma?

Neuroblastoma is a very aggressive childhood cancer.   

·         2 children are diagnosed with neuroblastoma every week in the UK

·       1 of those babies and children will have high risk disease, where the cancer has spread to other parts of their body like the liver, bones  and bone marrow, lungs, skin and brain

·         It causes 15% of childhood cancer deaths 

·        It is the commonest ‘solid’ cancer diagnosed in babies and children

·       The long term survival rate for babies and children with high risk neuroblastoma is less than 40%—half the average survival rate for other childhood cancers

 

About the NCCA UK

We believe that UK children with neuroblastoma should have access to the best clinical treatment available to them locally or internationally. Taking into consideration the individual nature of the disease, the best treatments available may differ for each child.

If children cannot join a British trial, or need a clinical treatment that is only available outside the UK, they may have to travel abroad to give them the best chance of beating the disease.

Children’s treatment options should not be limited by where they live.

 

What we do

We help babies and children with neuroblastoma to get help if they can’t join a UK trial, or if they need a clinical treatment that is only available to them abroad.

We need your help to fund children’s treatment costs, to support families and to pay for research into the disease.

 

Find out more

We welcome any questions you may have about our work. Please call us any time on telephone 020 7284 0100 or email us on info@ncca-uk.org. You can also contact us through our www.ncca-uk.org