Lauren Manguso

Let's End Endometriosis

Fundraising for Endometriosis Foundation Of America Inc
US$325
raised of US$300 target
by 3 supporters
Donations cannot currently be made to this page
Event: End Endo 5K — November 2020, on 1 November 2020
Participants: Matt Manguso & Lauren Manguso
Join Team EndoFound for the second virtual 5K to End Endometriosis. Find your own course to walk, run, hike, bike, or even dance to raise money for endometriosis advocacy, awareness, education, and research! Visit endofound.org/endendo5k to register.

Story

As a member of Team EndoFound, I am taking to the streets on a mission to End Endo. 

As someone who has suffered from Endometriosis for 17+ years and spent 16 of those years trying to find a doctor who would treat me, I can tell you first hand how devastating this disease can be. I have spent thousands of dollars on medical procedures trying to figure out what was causing my pain and seen over 15 medical professionals seeking help for what I suspected all along to be this disease (which I had to "diagnose" myself through matching my symptoms to an endometriosis forum since every doctor I had seen always insisted my pain was "normal"). 

Finally, after almost a year of infertility, I found a doctor who would agree to surgery, only to find that not only did I indeed have Endo (stage III) but it was so bad that all of my pelvic organs were adhered to one another, I had a large blockage in my intestines and one of my fallopian tubes was so damaged it had to be removed--the other barely hanging on. Although I am so unbelievably grateful for the doctor I have, this is a clear indication of how grossly overlooked and understudied this disease is by the medical community. No one should have to go through something like this and no one should be continually gaslighted by medical professionals saying there is nothing wrong with you or Endo is not that serious. If you are experiencing pain there is something wrong and all cases of Endometriosis are serious.

 Endometriosis is an extremely painful condition that affects an estimated 200 million people worldwide-----1 out of every 10 women have it and yet on average it takes about 11 years to diagnose-----meaning an introduction to treatments such as surgery and hormonal intervention can be late in the process, greatly increasing the chances of internal organs and fertility already being affected. This is absolutely insane to me and downright unacceptable. It's time to raise awareness, educate the public, increase research, and drastically bring down the number of years for diagnosis so women and girls like me can get the treatment they need sooner.

Let's End Endo!

About the campaign

Join Team EndoFound for the second virtual 5K to End Endometriosis. Find your own course to walk, run, hike, bike, or even dance to raise money for endometriosis advocacy, awareness, education, and research! Visit endofound.org/endendo5k to register.

About the charity

The Endometriosis Foundation of America (EndoFound) strives to increase disease recognition, provide advocacy, facilitate expert surgical training, and fund landmark endometriosis research. Engaged in a robust campaign to inform both the medical community and the public, the EndoFound places particular emphasis on the critical importance of early diagnosis and effective intervention while simultaneously providing education to the next generation of medical professionals and their patients.

Donation summary

Total raised
US$325.00
Online donations
US$300.00
Offline donations
US$25.00

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