I am taking part in 700 miles barefoot relay challenge in aid of raising fund to create treatment for my beautiful daughter Hasti who suffers from a rare disease cdls. 

My husband Chris Brannigan recently completed 700 miles barefoot across UK and we have created a relay challenge to redo the whole route as a community. 

I aim to complete 2 legs of the relay , 10 miles ,  in one  day. My legs are in and around west byfleet . It is nothing compare to what Chris did and the pain he went through but it is still big challenge for me and I hardly can walk 10 meter barefoot never mind 10 miles. If you are in the area please come and join me on the day for few miles xX 

Best,

Hengameh ( Hasti's mum) 

My name is Chris Brannigan and Hasti is my daughter, she is 8 years old and dreams of being a chef and a dancer.Hasti however has a rare genetic disease, Cornelia de Lange Syndrome (CdLS). CdLS is characterised by reduced growth, global developmental delay, feeding problems, speech and language difficulties hearing problems and, in many cases, limb abnormalities, but it is rare for children with CdLS to become adults who live independent lives, often needing round the clock care for their entire lives. No cure or treatments exist for this terrible disease which occurs in just one in every 30,000 live births, but we are committed to change that so that all children with CdLS, both now and in the future, can enjoy better lives. But to do that, we need your help. We just need £400,000 to pay for the research to create a treatment for this disease.