Dave Roe

Support the Defeat MSA Alliance

Fundraising for MULTIPLE SYSTEM ATROPHY - GIVE HELP, GIVE HOPE!
US$513
raised of US$1,450 target
Giving Day, 1 December 2020
We Raise funds to Defeat MSA Alliance to Help all people living with MSA!

Story

Please help me support the Defeat MSA Alliance by making a donation through my page. 

I was diagnosed with Multiple System Atrophy in February 2020 after 2 years of feeling dizzy, having balance problems, and other issues with daily activities that I previously did without difficulty: walking, writing, speaking, and elimination.  This has really altered the quality of my life. It was a relief to get a diagnosis but it is a condition that no one or their loved ones wants to experience, because it it progressive and fatal. It is not related to MS (multiple sclerosis).

Along with the loving support of my wife, family and friends, Defeat MSA Alliance has been extremely helpful by providing me a way me to connect with other patients, caregivers, doctors specializing in MSA, holding international conferences, discovering clinical trials, advocating for research, and so much more.  For the time being I am making the most of my current abilities and taking life one day at a time. 

What is Multiple System Atrophy (MSA)? Here's a definition from the NIH:

"Multiple system atrophy (MSA) is a progressive neurodegenerative disorder characterized by a combination of symptoms that affect both the autonomic nervous system (the part of the nervous system that controls involuntary action such as blood pressure or digestion) and movement. The symptoms reflect the progressive loss of function and death of different types of nerve cells in the brain and spinal cord."

There is no known cause, no effective treatment and no cure (yet). Due to the fact that MSA is such a rare condition, research funding for treatment and cure is minimal. 

For more information about MSA, see Please try the links below:

https://www.ninds.nih.gov/disorders/patient-caregiver-education/fact-sheets/multiple-system-atrophy#:~:text=Multiple%20system%20atrophy%20(MSA)%20is,pressure%20or%20digestion)%20and%20movement.

https://www.mayoclinic.org/diseases-conditions/multiple-system-atrophy/symptoms-causes/syc-20356153

Thanks for your support!

Defeat MSA Alliance is an inclusive US based 501(c)(3) charity that aspires to balance efforts to support patients, educate medical professionals, raise public awareness and nurture promising research. 

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About the charity

Realizing that much of the current attention is focused on more widely known diseases, Multiple System Atrophy is often overlooked. MSA patients are confronted with a dim prognosis and left with few options. Defeat MSA Alliance is an inclusive US based 501(c)(3) charity that aspires to balance efforts to support patients, educate medical professionals, raise public awareness, nurture promising research and advocate for the MSA community. Staffed entirely by volunteers, Defeat MSA Alliance specifically aims to achieve a five-fold mission: To build a world that truly supports people with MSA To foster better medical education about MSA To increase public awareness about living with MSA To cultivate promising research into treatments and slowing MSA To advance the interests of all people challenged by MSA. Defeat MSA Alliance invites all other like-minded individuals, around the world, to join us in this noble fight: to speak for those who cannot, with one mind, one heart and one voice: to defeat MSA forever!

Donation summary

Total raised
US$513.00
Online donations
US$513.00
Offline donations
US$0.00

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