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ME/CFS is about 2x as prevalent as Multiple Sclerosis and more than 3x as prevalent as HIV/AIDS, and yet very little research is being done into the causes of it.
Imagine having to decide whether or not getting a cup of coffee with a friend in town is worth spending the next few days in bed. We don't have to make these decisions, but people suffering from ME do. Everything someone with ME does costs them so much more than it does anyone else, and yet I've still seen people disregard it claiming they're just being lazy. It's a debilitating, but often invisible, condition.
I see my SO struggle with her ME on a daily basis, but since the information about it is so scarce, there are no scientific grounds on which she can base any kind of treatment. Any management of her energy and condition which helps is a result of years of trial and error. I hope one day we can change that, find out what causes it, how to treat it and hopefully help sufferers worldwide.