We are raising funds and awareness for PANS PANDAS UK by joining others in the UK on 9th October to walk 4 km to support families like ours affected by PANS PANDAS. 

PANS PANDAS is a little understood condition, triggered by illnesses like COVID, which causes tics, involuntary (often obscene) words and gestures, OCD, hallucinations and depression/anxiety, as well as other neuropsychiatric symptoms. It is frequently misdiagnosed as Autistic Spectrum Disorder.

PANS PANDAS UK is doing great work raising awareness, supporting families and providing resources and training for educators and medical staff, and fighting to achieve NHS recognition and treatment of the condition.

Fleur used to be jolly, funny, and energetic.  Today, she can manage at most one or two lessons a day at school, where she is starting work towards her GCSEs, having missed most of last year.