Thanks for taking the time to visit my JustGiving page.

As most of you will be aware, in December 16th 2009 at the age of 14 and a half months, my precious, gorgeous and so so brave little man, got his wings and became an angel.  That was the worst day of my life.

Albi was born with a genetic skin condition that my husband and I knew nothing about.  Epidermolysis Bullosa, or EB for short, is a life threatening skin disease and one which most people have never heard of.

When Albi was born with skin missing on his arms and legs, we could never have imagined the nightmare that lay ahead for our beautiful boy.  At the slightest touch his skin would blister or just completely come away from his body.  Leaving open wounds that wouldnt heal for days.  In the summer I had to leave him sat in front of a fan all day to keep him cool and try to get the sore skin to try so that some new skin could grow. 

Being his mum was simply the most wonderful experience of my life, I will always be grateful to Albi for teaching me so much.  He was the bravest person I have ever met, he smiled throughout everything, even bandage changes that had to happen morning and night and at other times throughout the day if he banged himself which of course he did as he grew.

I could go on forever writing how truly amazing Albi was, of course with a bitter sweet tinge in my writing.  The rest of my life will be bitter sweet without my little angel in it, although I am sure he is up there somewhere causing mischief and making everyone smile just as he did here.

Next time you have the tiniest blister on your foot from those new shoes, think about the reality of EB...  Bathing with a blister hurts like hell, can you imagine how it feels with blisters all over your body??  Think of my baby and his braveness, his loving smiling for those of you who were lucky enough to meet him.

Last year, me and my team raised the most money that Debra had ever raised for EB, lets try to beat it this year, for Albi xxxx

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