Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.

 

I am raising money by doing a sponsored skydive on 25th June 2011.

I am aiming to raise atleast £550! I have chosen this charity because one of my best friends suffers with Cystic Fibrosis and I hope one day they will find a cure for this illness. Please help me to raise money for this worthy cause by sponsoring me!

 

Here are a few facts about CF and reasons why they need your help to find a cure;

• Cystic Fibrosis (CF) is one of the UK's most common life-threatening inherited diseases.

• Cystic Fibrosis affects over 8,500 people in the UK.

• Over two million people in the UK carry the faulty gene that causes Cystic Fibrosis - around 1 in 25 of the population.

• If two carriers have a child, the baby has a 1 in 4 chance of having Cystic Fibrosis.

• Cystic Fibrosis affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus. This makes it hard to breathe and digest food.

• Each week, five babies are born with Cystic Fibrosis.

• Each week, two young lives are lost to Cystic Fibrosis.

• Around half of the CF population can expect to live over 38 years, although improvements in treatments mean a baby born today could expect to live even longer.

 

 Here is a note from my friend Kim that tells us what her day to day life is like living with CF;

My name is Kimberley & I have suffered with Cystic Fibrosis & related illnesses such as CFR Diabetes since I was diagnosed at six weeks old.
I have numerous admissions to Royal Devon & Exeter Hospital for intravenous antibiotics, with several episodes of haemoptyses (bleeding from the lung - bringing up blood) & bowel blockages.

My lung function has declined now to such a point, (now a mere 27%) I struggle with day to day life. I have an extensive list of medications & treatments to take & do daily just to keep me ‘functioning’

I have a portacath to administere my iv’s, a ‘mickey button’ in my tummy to give me over night feeds or ’extra’ portions as my calorie intake is high as I don’t absorb nutrients from eating normal food. Special fridges for my home iv’s. An oxygen concentrator as and when I need the help to breathe & many strategically placed ‘grab rails’ for help around my home. I have a stair lift which is in constant use, a manual wheelchair for someone to push me & currently under going meetings for my electric wheelchair so I could get out on my own if I needed. My fiancee cares for me & on such days where Im at my worst I can’t even wash & dress myself.

I have had previous assessments in the past & now again looking towards another assessment for a lung transplant before this illness takes all of what’s left of me... (Kim is only in her 20's)!!

Also if you are on facebook please add my jewellery page..

Tantalising Tiaras and Jewellery

https://www.facebook.com/group.php?gid=85901623523&ref=ts

All money from any jewellery sold on this page will also go to The Cystic Fibrosis Trust!

Many Thanks

Hayley xx

 

HI EVERYONE

JUST AN UPDATE FOR ALL YOU CF SUPPORTERS..I AM KEEPING THIS PAGE ONGOING SO THAT WHEN I SELL ANY JEWELLERY I MAKE FOR THE CYSTIC FIBROSIS TRUST, PEOPLE CAN PAY DIRECT ON HERE FOR THE MONEY TO GO DIRECT TO THE CF TRUST AS ITS A SIMPLE EASY WAY :-)

AS YOU CAN SEE THE TOTAL FROM THE SKYDIVE WAS £1270.50, LETS SEE HOW MUCH MORE WE CAN RAISE TOGETHER ON THIS PAGE FOR THIS FANTASTC CAUSE!

MANY THANKS FOR YOUR CONTINUED SUPPORT XX