I have decided to do Tough Mudder alongside my Work colleague Ben Cardwell for his son Alfie, here is his story.

Hi my name is Alfie i will be 3 years old in july. In November 2015 i was diagnosed with CDC. CDC is a chromosomal deletion disorder also known as (5p syndrome) as the condition is caused by a deletion on the 5th chromosome. People born with CDC experience delay in early childhood and have lifelong learning, physical and speech and language disabilities.


I am a very happy, cheeky little boy with a wicked sense of humour, i understand everything you say to me but it takes me a little longer to process things. Since being diagnosed and having the correct support some of my milestones have been reached e.g I can sit up unaided and i have just been measured for my Mustang walking frame and i cannot wait to start using it. I may not be able to communicate verbally yet but my mummy and daddy and family understand me perfectly!!! I am a huge Justin Bieber fan and love dancing.


My Aim is to raise awareness to CDC as i am quite unique as there are only 1 in 50,000 babies a year born just like me love Alfie xxx


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