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I, along with others will be taking part in the Prudential RideLondon-Surrey 100 on August 4th this year
to support the EHE Rare Cancer Charity which is raising funds to help finance critical research into EHE, a very rare form of cancer. The ride starts in Queen Elizabeth Olympic Park, then follows a 100-mile route on closed roads through the capital and into Surrey’s stunning countryside. With leg-testing climbs and a route made famous by the world’s best cyclists at the London 2012 Olympics. The ride will finish on The Mall in central London, shortly before 150 professional cyclists race in the Prudential RideLondon-Surrey Classic on a similar route.
This cause is very close to my heart as my sister-in-law has EHE and has recently gone through a liver transplant as part of her ongoing treatment. Her recovery from this major operation will be long and has only just started, not to mention the ongoing treatments for EHE. Living with EHE is very hard for patients and their families, as so little is known about this form of cancer. We want to help her and others with EHE, by helping to fund that research. So please, if you can, sponsor us by donating on this page. No matter how small your donation it will be invaluable, and together with others will helpsave lives.
The charity’s focus is Epithelioid Haemangioendothelioma (EHE), one of the rarest cancers in the world. It typically presents with multiple tumours at the same time. It has both an indolent (passive) and an aggressive form. Sadly, the indolent form will frequently become aggressive and therefore fatal. EHE targets women more than men, on a ratio of approximately 4:1. It can present at any age but mostly appears in children, teenagers and young adults where it is often at its most aggressive. There is also a strong clinical signal that the onset of EHE may be connected to puberty in girls and pregnancy in young women, a characteristic of this disease which is particularly distressing. Today, the oncology community have no effective treatments for this cancer, nor can they provide any form of reliable prognosis. And being so rare means that governments, the pharmaceutical industry, and even the big cancer charities, do not provide funding for research. That is why, at EHERCC, we are dedicated to raising the funds needed to carry forward the critical research required to understand EHE and provide answers to the many questions that exist for this cancer. You can find out more about EHE and the charity at www.ehercc.org.uk