Gary's page

Gary Conlon is raising money for CdLS Foundation UK & Ireland
£451
raised
Donations cannot currently be made to this page

Virgin London Marathon 2010 · 25 April 2010 ·

CdLS Foundation UK & Ireland

Verified by JustGiving

RCN 1054033
We ensure early, accurate diagnoses of CdLS to understand CdLS and help those with it

Story

Thanks for taking the time to visit my JustGiving page.

I will be running the London Marathon 25th April 2010 for CdLS (Cornelia de Lange Syndrome).

What is CdLS?

CdLS is a very rare genetic disorder that effects both physical and intellectual development of children. Its difficult to say how common the syndrome is but it is estimated to be between 1 in every 40,000 and 1 in every 100,000 babies born.

 

Why CdLS?

The reason I have chosen to raise money for CdLS, for those of you who don’t know, my sister Abby was diagnosed with The syndrome at the age of 9 so I have a very personal connection to the condition so I’m sure you can appreciate I am making it my goal to raise as much money as possible!

 

How can you help?

Easy… PLEASE, please sponsor me!  As I said I want to raise as much money as I can for a charity that is pretty much unknown and very important to me.  For further information on the website is www.cdls.org.uk

Thank you in advance, it means a lot to me.

 

Much love Gary

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About the charity

CdLS Foundation UK & Ireland

Verified by JustGiving

RCN 1054033
The CdLS Foundation exists to ensure early and accurate diagnosis of Cornelia de Lange Syndrome ; promote research into the causes and manifestations of the syndrome and help people with a diagnosis of CdLS to make informed decisions throughout their lifetime

Donation summary

Total
£451.00
+ £124.38 Gift Aid
Online
£451.00
Offline
£0.00

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