Hi, I'm cycling from Chester to Paris starting on August 3rd 2011. This journey of over 500 miles is in aid of Dravet UK.

 

Dravet Syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a progressive childhood neurodevelopmental disorder characterized by severe epilepsy that does not respond well to treatment. Estimates of the prevalence of this rare disorder have ranged from 1:20,000 to 1:40,000 births, though incidence may be far greater as new genetic evidence is discovered. It occurs more frequently in boys than in girls, but knows no geographic or ethnic boundaries.