Lucy Brown

Freya's Hair cutting

Fundraising for FOP Friends
£244
raised
by 17 supporters
Give Now
Hair cutting, 26 June 2021
FOP Friends

Verified by JustGiving

RCN 1147704
FOP Friends
We are raising money to fund research into FOP

Story

Thanks for taking the time to visit my JustGiving page.

Freya will be having her hair cut, which she will donate to The Little Princess Trust. She would also like to try some money for her friend Ellis who has a rare condition called FOP.

Here is a link to a newspaper article about Ellis

https://www-mirror-co-uk.cdn.ampproject.org/v/s/www.mirror.co.uk/news/uk-news/boy-growing-second-skeleton-one-13168337.amp?amp_js_v=a6&_gsa=1&usqp=mq331AQHKAFQArABIA%3D%3D#aoh=16208947044630&referrer=https%3A%2F%2Fwww.google.com&_tf=From%20%251%24s&share=https%3A%2F%2Fwww.mirror.co.uk%2Fnews%2Fuk-news%2Fboy-growing-second-skeleton-one-13168337

Please take a look and thank you for your donation x 

Share this story

Help Lucy Brown

Sharing this page with your friends could help raise up to 3x more in donations

You can also help by sharing this link on

About the charity

FOP Friends

Verified by JustGiving

RCN 1147704
FOP Friends
FOP Friends was established to raise money & awareness for the rare genetic condition fibrodysplasia ossificans progressiva. FOP is one of the rarest and most disabling genetic conditions known to medicine. A cure is near, but we need to keep research funded to perfect it in time for those with FOP.
Find out more about fundraising with JustGiving

Donation summary

Total raised
£243.25
Online donations
£243.25
Offline donations
£0.00

* Charities pay a small fee for our service. Find out how much it is and what we do for it.