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Our incredible little boy Finn was diagnosed with Williams Syndrome when he was just 12 weeks old following open heart surgery when he was 7 weeks old to correct aortic & pulmonary stenosis. 

Williams Syndrome is a very rare genetic syndrome, caused by the spontaneous deletion of approximately 25 genes from one copy of chromosome #7. It’s so rare that only 3500 individuals in the UK have Williams Syndrome & only 1 in 30 GP’s will ever see a patient with Williams’ during their career. 

It causes physical, cardiac and mental health problems, sensory, behavioural, social and processing issues and learning disabilities and much, much more. Finn has been through so much in his first 2 years but he takes it all in his stride; he has a whole team of paediatricians, cardiologists & different therapists who support us but he’s a super happy chap who loves custard, music & most of all his big sister! 

The Williams Syndrome Foundation is a small charity based in the UK that supports families like ours. We want to raise as much awareness as we can about this rare disorder & help keep the Foundation going. 

This is why (with the help of Jack Plumridge from Afterburn Fitness) we are embarking on a 10 hour fitness marathon on Sunday 25th July from 08.00-18.00! Come along for the full 10 hours & join in a range of fitness classes from bootcamp and running to yoga and stretching or just join for one or two. There will be something for everyone including the kids! (full schedule to follow!) 

All money raised will go towards the Williams Syndrome Foundation. .