emma spooner

Emma's page

Fundraising for FOP Friends
£240
raised of £150 target
Donations cannot currently be made to this page
Event: Hastings Half Marathon 2020, on 29 March 2020
FOP Friends

Verified by JustGiving

RCN 1147704
We are raising money to fund research into FOP

Story

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I do not find running easy but my aching body will stop aching after a couple of days, the person I love the pain never stops. FOP is a very rare illness and we need to find a cure for this cruel disease. We need to raise money for research and this charity is fantastic it supports suffers offers advice and is looking into treatments and hopefully one day a cure. This disease has not got a cure yet we need one, to see the person you love in pain everyday is heartbreaking .Please please any amount I will be so so grateful. Please donate this cause means so much to my family. Thank you xxx xx 

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About the charity

FOP Friends

Verified by JustGiving

RCN 1147704
FOP Friends was established to raise money & awareness for the rare genetic condition fibrodysplasia ossificans progressiva. FOP is one of the rarest and most disabling genetic conditions known to medicine. A cure is near, but we need to keep research funded to perfect it in time for those with FOP.

Donation summary

Total raised
£240.00
+ £32.50 Gift Aid
Online donations
£240.00
Offline donations
£0.00

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