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Esmé, a lovely, smiley little girl in Alfie's class has Rett Syndrome. When she was born in 2007 she was apparently healthy but at the age of 2 her family received the devastating diagnosis. Esmé has not got brain damage but she cannot walk, talk or feed herself. She has scoliosis and she has seizures and breathing difficulties. However, she always seems to be happy and smiling.

On May 17th 2015, Eddie and I are planning to complete the Ten Tors Challenge on Bodmin Moor. We are walking with a group of friends from St. Mabyn, including Natalie and Matt Slater, Esmé's parents, who have organised our team so that we can raise vital money for Reverse Rett, a charity which funds research into finding a cure for Rett Syndrome.

Reverse Rett explain what this condition means:

Rett Syndrome affects nearly every aspect of these girls' lives; taking away their ability to walk, talk and use their hands. Many girls have problems with breathing and eating. Many have seizures. Research has shown that girls with Rett do not have brain damage. They know and understand much more than their bodies allow them to show - but they are locked in, trapped by a body that cannot obey signals from their brain.Rett Syndrome is most often caused by a spontaneous genetic mutation and can occur in any family at any time. It affects around 1:10,000 live female births.Whilst there is currently no treatment for Rett Syndrome, there is hope.In 1999 scientists identified the genetic mutation that causes Rett Syndrome. In 2007, they unexpectedly reversed the condition in mouse models of even late stage disease. Our research efforts are now focused on translating these research developments into treatments and cures for our children living with Rett Syndrome today.

Please help us help Reverse Rett to find a cure for Esmé and all the other girls with Rett Syndrome.  Thank you so much for your support, however big or small. Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.