Elisabeth's page

Elisabeth Gleave is raising money for Cystic Fibrosis Trust

Participants: My sister Ems Jesse and a team of about 20, Team Breathe Easy

Story

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Noah was diagnosed with Cystic Fibrosis at only 8 days old, a life long condition caused by a gene mutation which effects the flow of salt and water in the body and causes a build up of mucous, most commonly in the lungs and digestive system.

At 2 weeks old, Noah started his life long medication of a concoction of antibiotics, vitamins, enzymes, antacids and most recently a nebulizer, as well as physio twice a day. At 3 weeks old, Noah was admitted to the RVI, Newcastle with parainfluenza, which kept him there for a week of IV antibiotics. In the 6 months that followed, Noah was on around 6 more courses of oral antibiotics to treat recurring coughs and eventually he was admitted to West Cumberland Infirmary, at 7 months old, where he spent 4 days and then continued with IV antibiotics at home...Then he had 6 weeks cough free!!!

Since then, Noah has picked up every bug going and has been admitted to the RVI twice in the space of a month. Once with rhinovirus at 10 months old and most recently RSV at 11 months old.

My sister Ems and her husband Dan have adapted amazingly well to the constant challenges and regular 2 hour trips from Carlisle to Newcastle where the CF specialist is based, whilst also looking after their 3 year old little girl. They have remained positive and determined throughout this last year in the hope that they can teach their two children to never give up fighting and to always keep smiling!!

So please, as you read this, don't feel sorry for Noah. I have written his life so far in detail so that you can be aware of what life with CF is like for so many! Instead, join us and Noah in a shared determination to beat this disease so that maybe one day he won't have to fight so hard to live the life he deserves!

There's a cure out there... Please help us find it!

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