Story
In October 2021 I was taken into hospital as I was extremely unwell. I had pins and needles, numbness and tingling from the knees down to my toes, and my forearm down to my fingertips. I also had pins and needles in my mouth, nose and tongue. I was awaiting more blood tests from my GP however my mobility rapidly deteriorated and my doctor called for an ambulance for me.
I was on a ventilator for 18 days in ICU and was very vulnerable. I recieved IVIG treatment which thankfully, was successful, a bronchoscopy and also a lumbar puncture which confirmed my diagnosis of Guillain Barre Syndrome. I had VAP twice which fortunately was treated very quickly by the amazing hospital staff. Once I was able to breathe on my own I was moved to two different wards before being discharged. I now get Physiotherapy and Occupational therapy at home to help me get back on my feet and have a Psychologist to help me process my ICU experiences. Currently, I require the use of a wheelchair but can take a few steps with my walking frame "Wilma".
I want to raise money for GAIN as well as spread awareness of Guillain Barre Syndrome. The more awareness and knowledge people have of these conditions the better, as it may help people to get their diagnosis' quicker and get the support and treatment they need. I owe my life to the ICU staff in VHK, Fife. They were absolutely brilliant, I wouldnt be here today if it wasnt for them ❤
Guillain-Barré syndrome is a rare autoimmune condition affecting the peripheral nervous system, usually leading to temporary or long-term paralysis. Around 80% of those with GBS will make a good recovery, but between 5-10% of people will not survive and the other 10-15% may be left with severe mobility or dexterity issues. GAIN helps people understand and manage both acute and chronic variants of the syndrome, raises awareness, and promotes clinical and non-clinical research into these conditions. For more info visit www.gaincharity.org.uk