Suzanne Bell

Members of the Dishforth Military Wives Choir Barefoot Relay

Fundraising for Hope for Hasti
£1,443
raised of £1,000 target
Hope for Hasti Barefoot Relay, 11 September 2020
Hope for Hasti
Campaign by Hope for Hasti (RCN 1188769)
I'm Chris Brannigan and Hasti is my daughter; she has a rare genetic disease (CdLS). I'm embarking on a 1200 mile journey from Bar Harbor, to Jacksonvill carrying 55lb and walking BAREFOOT to raise funds for a gene therapy for Hasti's condition.

Story

Some of our choir members are taking part in a barefoot relay across Britain following and recreating Chris's route, while carrying Obama the Llama with us to pass onto the next leg.

We have chosen Leg 98 to walk barefoot starting at Ripon Cathedral and ending in North Stainley where we will pass Obama the Llama to Leg 99!

We hope to raise a minimum of £100 so together all legs can raise at least £12,000 for #hopeforhasti

#barefootsoldier #barefootrelay

CDLS is a rare genetic condition that presents children with a wide range of difficult physical and behavioural challenges.

Hope for Hasti is funding cutting-edge research to develop a gene therapy for this rare condition which will dramatically improve their quality of life.

Working closely with some of the brightest minds in genetics, we can change the lives of the children affected by this illness. To achieve our goal, we need your help.

Share this story

Help Suzanne Bell

Sharing this page with your friends could help raise up to 3x more in donations

You can also help by sharing this link on

About the campaign

I'm Chris Brannigan and Hasti is my daughter; she has a rare genetic disease (CdLS). I'm embarking on a 1200 mile journey from Bar Harbor, to Jacksonvill carrying 55lb and walking BAREFOOT to raise funds for a gene therapy for Hasti's condition.

About the charity

Hope for Hasti

Verified by JustGiving

RCN 1188769
Hope for Hasti is a charity focused on the development of a gene therapy for Cornelia de Lange Syndrome (CdLS), to improve the quality of life of those living with this rare and little known genetic condition. But those that live with CdLS deserve hope, and we aim to give it to them.

Donation summary

Total raised
£1,443.00
+ £241.25 Gift Aid
Online donations
£1,443.00
Offline donations
£0.00

* Charities pay a small fee for our service. Find out how much it is and what we do for it.