My husband and I have decided to run for CCHS. 

My niece, Emma, was born with this extremely rare illness and I've seen the struggle that she, and her family, have had to go through due to the lack of awareness surrounding CCHS. 

It took a long and emotional journey for Emma to even be diagnosed as CCHS is so unheard of.

This is our way to show our support to Emma, her family and everyone that has a rare illness.

Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.