Story
We found out we were pregnant in December 2020💙 we went for an early a scan and found out we were having identical twins!💙 from that moment we were totally in love❤️ We found out they were boys and loved the idea of having 3 boys under 2!🙈 we had a scan on the Thursday which went fine! and Friday night I went into early labour at just 25+5 weeks! Nearly had the boys naturally but then my contractions went from everything to nothing! So I was taken in for a c section, both boys were born and ventilated straight away but we were told they were doing amazing and nice and stable! Jaxson was born at 00:53 am and then Tommy was born at 00:55am💙we knew we had a long road ahead of us but that initial fear of going into labour 15 weeks premature had now gone because our boys were stable!💙 unfortunately 3 hours later, the doctors came in and told me we need to say goodbye to Tommy as he wasn’t going to make it! I’d never felt my heart hurt as much as it did that night 💔at 4:17am Tommy passed away in my arms while his daddy held his teddy bear next to him and held me❤️ Words will never be able to explain how much it hurts loosing Tommy💔 our brightest star in the sky, our previous angel👼🏼
Jaxson was transferred to Southampton for high care and is now 27 days old doing amazing❤️ A real little fighter💙 when I got to Southampton the nurses told me about the Skye high foundation and instantly I loved it! Although my heart was hurting I wanted people to know that I did have twins, tommy was here! They put a purple butterfly cot card on jaxsons cot for me so everyone was aware of the situation and that tommy was always protecting his brothers cot❤️ I felt so alone and as if no one understood the pain we were feeling while also trying to keep strong for Jaxson! My constant thought whenever I change jaxsons bum or feed him is ‘oh I should be doing this again for Tommy but he’s gone💔’ and as I look round and see all these mums caring for their babies I think ‘none of you have a clue how I’m feeling’ which I am so glad about as I wouldn’t wish this pain on anybody but it would be nice to speak to someone who understands and because of the purple butterfly symbol I am aware that there are other family’s going through the same thing as us💜
We would like to raise money for the Skye high foundation so no mum ever has to feel like her ‘lost twin’ didn’t exist or that they shouldn’t be spoken about! We talk about Tommy everyday! I come in to see Jaxson and I always say ‘I hope Tommy’s been looking after you monster!’ And always talk to his nurses about Tommy as well as Jaxson💙 our ‘lost twin’ shouldn’t be forgotten!
The Skye High Foundation was set up to help families dealing with the loss of a baby who was part of a multiple birth. They created the purple butterfly cot card, which is to be placed in an incubator or cot in memory of their sibling. The cot card is used in conjunction with a poster that is placed around maternity and neonatal units, which explains the meaning of the purple butterfly. The cot card allows families the opportunity to make others around them aware of the journey they are going through. In addition they have created packs which can be sent to either families or hospitals.