Story
I have decided to cut my hair for charity and I will be taking off roughly up to 17/18 Inches of it (See photos). when I reach my target I will be cutting my hair and donating that to the Little Princess Trust to make a wig for a child who has lost theirs.
The charity that is closest to my heart and that I will be donating the money to is the Cystic Fibrosis Trust. Cystic Fibrosis is a genetic condition that slowly destroys a persons lungs and digestive system. It is a condition you are born with and it can seriously shorten a persons life expectancy. It is passed on through receiving a set of faulty genes, one from each parent and the faulty gene is carried by 1 in 25 of us - myself being 1 in 25.
The young lady in my photos is Darcie, she is 3 years old, she is my beautiful niece and she has Cystic Fibrosis. She is energetic, cheeky, happy, stroppy, sweet, angry, innocent, clever, she is a typical 3 year old young lady and she has the ability to change her mood in the click of her fingers. She has a list of things she needs to do everyday in order for her to stay healthy and well enough to do the things any 3 year old should be able to, including physio which stops the mucus from settling on her lungs and doing more damage. She has a list of medications that she needs to take throughout the day, including one that she has to take with every meal, so that she gets what she needs to from her food. If she gets a slight cold, she has extra antibiotics to prevent her getting a chest infection because this could be very damaging to her if she does And these are just a few of things she faces everyday. At the age of 3, this little girl has had to deal with a lot more than I ever have and will continue to do so for the rest of her life, however long that will be. She has actually never known any different. She copes, but she shouldn't have to, which is why I want to contribute to her future and the future of anyone else who has it. The CF Trust strives for a life unlimited. This means that the condition wont destroy their lungs and make it feel as though they are breathing through a straw, it wont mean that lung transplants are a future prospect and it wont mean that antibiotics are needed after a sneeze 'just in case.' It means that the little girl in my photos and many others like her wont have to face the fact that they will, most likely, die younger than they should and be in and out of hospital attached to oxygen tanks and other apparatus. It means that she can go to school and join in with activities without special measures and it means she could be around someone else like her, someone who understands first hand what she is going through or someone who could help her through from experience, without them being a danger to each other. It means that she could grow up and not have to worry. This little girl is my inspiration <3
Please share and donate for this charity and for a life unlimited. Lets hope they find a cure. <3
Some disabilities are invisible.
https://www.cysticfibrosis.org.uk/
http://www.littleprincesses.org.uk/