Daniel 's page
Participants: Lejog 2012
on 25 March 2012
Participants: Lejog 2012
on 25 March 2012
Thanks for taking the time to visit my JustGiving page.
Myself and a friend are about to taken on the toughest challenge of our lives, cycling just short of 1000miles in ten days,so please read the section below and donate to this worthy charity.
Duchenne Muscular Dystrophy
Imagine being told that your perfect beautiful boy or girl will not survive past their late teens /early 20’s.
Four years ago we were told of the news that no parent should hear. We had so many hopes and dreams about Sam growing up to be doctor, racing driver or in fact anything that he wanted to be and that changed one dark, sad afternoon.
Duchenne Muscular Dystrophy is 100% fatal and there is no cure. It attacks muscle tissue in a cruel, horrible way. Sam’s legs and pelvis are already rapidly deteriorating.
Between the ages of 8 and 12 Sam will loose the ability to walk. Confined to a wheelchair it will progress quickly to his shoulders and neck, along with his arms. By his early teens his basic motor skills will be gone and he will be almost paralysed. Eventually by his late teens/early 20’s Sam’s heart and lungs will begin to struggle and he will eventually become too weak to continue living.
Living with this knowledge is heartbreaking and we cry every day. Sam of course, takes it all in his stride but has recently started asking questions about why he has Muscular Dystrophy. With all this heartbreak there is a small glimmer of hope that the scientists working on treatments and even cures can manage to come up with something that might just help Sam and all the others living with DMD.
What is Duchenne Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD) is a heartbreaking disease. Children begin to see their muscles waste away and families struggle to cope with the diagnosis and day to day management of this condition. Young men die early in late teens or are left wheelchair bound and unable to move unaided. The hope for families lies in new treatments that can slow or stop DMD in its tracks.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.
So please dig deep and donate now.
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