Daniel Brazier

Daniel's page

Fundraising for The Vitiligo Society
£525
raised of £500 target
Donations cannot currently be made to this page
Event: Berlin Marathon 2010, on 26 September 2010
The Vitiligo Society

Verified by JustGiving

RCN 1069607
We raise funds to beat vitiligo to provide support & effective treatments

Story

I first noticed something had changed with my skin in 1999, when I as in my early 20's. It was actually at the Berlin Love Parade in the summer of 99 when I got badly sun burned on my face that I recognized something had changed. Before then I tanned nicely and could stay in the sun without thinking about it. Within 6 months I had almost no skin pigment left on my face and hands and most of my hair turned to white . . . it all happened very quickly. 

I`m a lot more fortunate than a lot of Vitiligo sufferers insomuch as I`m fair skinned so you would never really notice I had it, especially as I coloured my hair for the next 10 years to hide the fact I had Vitiligo. It was only when getting treatment to try and re-pigment in 2002/2003 did people notice as my face developed some large patches of dark pigment which contrasted strongly to the white patches (the picture!).

Whilst Vitiligo isn`t a life threatening condition, for me now the only real issue is the  love/hate relationship with summer. I love the summer heat and the sun but I hate having to wear ultra high factor or long sleeves and trousers, and the contrast between the de-pigmented skin and the normal skin becomes more obvious. For others, especially those with dark skin the psychological stress I can imagine being much worse as the condition is so much more visible and harder to conceal.

There isn`t yet a known cure, although there are treatments which can alleviate or partly reverse the depigmentation. Donating to the Vitiligo Society will support the scientific search for a cure as well as advising and counselling sufferers of this condition.

Thank you for your support.


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About the charity

The Vitiligo Society

Verified by JustGiving

RCN 1069607
The Vitiligo Society's mission is beat vitiligo by eradicating the psychological, social and physical effects on people’s lives and by finding effective treatments and a cure. We do this by: Providing up-to-date information on vitiligo Informing on, and contributing to, the latest research Developing and investing in our support services Being a strong voice for our community Reaching out to all the people who need us

Donation summary

Total raised
£525.00
+ £105.77 Gift Aid
Online donations
£525.00
Offline donations
£0.00

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