8 years ago my daughter was born with Kabuki syndrome, it is very rare syndrome and also very variable in its impact. We were lucky enough that Penelope was mildly impacted and also that we had the resources to help her.

Many families are severely impacted with some children unable to walk or look after themselves.

Kabuki UK helps families impacted by kabuki syndrome buy equipment, take days out and also to meet other families who are also impacted.

Thanks for visiting my page, and thanks for your donation.