Story
I know it's not running a Marathon, scaling a mountain, or eating our body weight in Baked Beans, but hopefully this stroll along the Thames, brandishing our debra t-shirts, will raise awareness as much as funds for this amazing charity.
5000 people in the UK are diagnosed with Epidermolysis (have I spelled that right?!) Bullosa, a rare but serious skin condition which impacts the skin at all layers. I won't do a very good job of explaining it, but if you head here; www.debra.org.uk, they'll explain more what EB is all about, and the vital work they are doing to support families who experience this condition everyday, and the research they are pioneering to one day find a cure.
So, please, if you can, donate a penny or three. Thank you!
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.